PROs Save Money, Lives, and Improve QoL

Donna Berry, PhD, RN
Published: Wednesday, Aug 09, 2017
Donna Berry, PhD, RN

Donna Berry, PhD, RN
Despite improved outcomes with new treatment and, especially, targeted therapies, patients with cancer continue to be afflicted by distressing symptoms and serious toxicities, which affect daily functioning and quality of life. Symptom burden is notable during therapy and can persist long after treatment. The patient and family experience is dominated by coping with symptom distress, including fatigue, gastrointestinal disturbances, and pain.

That monitoring could be achieved with a common technology: the patient portal component of an EHR. There are at least 5 requisites for implementation success: Patients must enroll to use the portal, the interface must be usable by patients of all literacy levels, clinicians should state the expectation that patients will use the portal to enhance communication, clinician response must be consistent and reliable, and a champion for implementation must oversee access and response metrics. The long-term results can certainly be beneficial, given careful planning and implementation.

References

  1. Basch E, Deal AM, Dueck AC, et al. Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment. JAMA. 2017;318:197-198. doi: 10.1001/jama.2017.7156.
  2. Fann JR, Hong F, Halpenny B, Blonquist TM, Berry DL. Psychosocial outcomes of an electronic self-report assessment and self-care intervention for patients with cancer: a randomized controlled trial. Psychooncology. 2016. doi: 10.1002/pon.4250.
  3. Berry DL, Hong F, Halpenny B, et al. Electronic self-report assessment for cancer and self-care support: results of a multicenter randomized trial. J Clin Oncol. 2014;32:199-205. doi: 10.1200/JCO.2013.48.6662.
  4. Basch E. Patient-reported outcomes—harnessing patients’ voices to improve clinical care. N Engl J Med. 2017;376:105-108. doi: 10.1056/NEJMp1611252.
  5. Jensen RE, Moinpour CM, Potosky AL, et al. Responsiveness of 8 patient-reported outcomes measurement information system (PROMIS) measures in a large, community-based cancer study cohort. Cancer. 2017;123:327-35. doi: 10.1002/cncr.30354.

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