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Sweeping changes to the way America delivers care at the end of life would better serve patients and their families, while achieving the goals sought in the Affordable Care Act (ACA) of better health, cost savings, and especially patient satisfaction
Amy Berman, RN, BS
Sweeping changes to the way America delivers care at the end of life would better serve patients and their families, while achieving the goals sought in the Affordable Care Act (ACA) of better health, cost savings, and especially patient satisfaction, according to the Institute of Medicine report, Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life, released September 17, 2014.
The 507-page report outlines how end-of-life care falls short at almost every point in the process, but it particularly faults the “perverse incentives” that waste money and do harm: patients land in the hospital instead of receiving at-home care, ambulance drivers take patients to the emergency department just to get paid, and the sickest patients, such as those receiving chemotherapy, are kept out of hospice when they would benefit the most.
In sum, the report recommends:
A foreword to the report takes harsh aim at those who promoted such talk for political gain, saying it set back the nation’s ability to make dying less traumatic and expensive for patients and their families. “The controversy on this topic and the political desire to avoid it do not alter the fact that every person will face the end of life one day, and many have had hard experience with the final days of a parent, a spouse, a child, a sibling, another relative, or a dear friend,” the report states. “At a time when public leaders hesitate to speak on a subject that is profoundly consequential for the health and well-being of all Americans, it is incumbent on others to examine the facts dispassionately, assess what can be done to make those final days better, and promote a reasoned and respectful public discourse on the subject,” it continues.
Meanwhile, data in the report show that a portion of patients at the end of life account for some of the highest medical spending. Of the estimated 18.2 million persons each year who are in the top 5% for healthcare costs, 11%, or 2 million, are in the final year of life. Of the 2.5 million deaths in the United States each year, 80% were among those who incurred healthcare costs that put them in the top 5% of healthcare spenders. Some of the highest spending takes place in the realm of cancer care, where discussions about palliative care can be especially beneficial. In November 2013, The American Journal of Managed Care welcomed keynote speaker Amy Berman, RN, to its conference, Patient- Centered Oncology Care, where she discussed how a less invasive, palliative approach to treating her breast cancer has given her a good quality of life. Unfortunately, she said, that’s not how things usually happen. “We have a system that is perfectly designed for someone to show up in the emergency department, where we don’t want them to show up,” Berman said.Beyond the overall recommendations, Chapter 5, “Policies and Payment Systems to Support High-Quality End-of-Life Care,” targets specific ways to change reimbursement structures such that it would benefit patients and provide meaningful, low-cost solutions for overburdened families. The report paints a portrait of a reimbursement system both grossly and dangerously out of touch with modern life and demographic reality: the reimbursement system is designed to pay for high-tech solutions but won’t help an adult daughter, who is trying to remain employed, with the cost of making sure her elderly mother is fed and bathed every day.
Too many families are caught in the middle—they are not poor enough for Medicaid, but they lack the resources for high-quality nursing home care. At the same time, with the population aging, the need for help with basic needs such as dressing, eating, bathing, and taking prescriptions will only increase. When patients can remain at home for these activities, the savings are enormous, but families need support for this to occur, according to the report. “Communities are testing new approaches to training and paying EMS personnel to assess and intervene with soluble problems at home, such as a fall without evidence of injury, rather than routinely transporting all patients who call 911 to the emergency department.”
Managed care disincentives. The report explains how generally, capitation policies in managed care work against the sickest patients making it to hospice, because their per-day costs may exceed what their managed care is paying for hospice care. Of note, in 2012, Medicare Advantage gave physicians an incentive to use hospice for these enrollees because once the patient reaches hospice, Medicare becomes the payer. “This hospice ‘carve-out’ makes it attractive for a plan to shift patients likely to be high cost from its rolls to the Medicare Hospice Benefit, but also decreases the incentive for the plan to develop high quality palliative care services.”
Medicaid has experimented with managed care models for dual eligibles, but a study by MedPAC identified several barriers: lack of awareness; difficulty in providing social supports, especially behavioral health; and conflicts between Medicare and Medicaid coverage as well as provider rules.
Palliative care and hospice. These programs are often misunderstood. They aim to meet a patient’s emotional, social, practical, and spiritual needs, as well as medical ones. The seriously ill patients that benefit are not all at the end of life, but they share an interest in receiving skilled communication about what to expect, and, according to the report, not receiving treatments that will provide little benefit and may provide harm. Palliative care as an alternative to what is called “futile care,” or interventions that are unlikely to help patients or will be of marginal benefit, may yield great savings.The chapter on redesigning reimbursement strategies made a series of recommendations: